A Manifesto of Self-Worth For Autistics

I don’t know who in the autistic community needs to hear this, but I am telling you now –

YOU ARE WORTHY.

You are worthy of your space here on this planet, of being treated with respect, and of treating yourself with respect, no matter what your situation, or your feelings, or how others are rating you or treating you.

Because autistics don’t have to be perfect, or anything close to it, to be worthy of that. Nothing we do, or say, or are, or have experienced, matters beside this fundamental fact. It matters only that we’re human, and we’re here.

So it doesn’t matter if you make mistakes in life. Even a lot of mistakes. Even if it seems you do nothing but make mistakes. Or your mistakes feel like earth-shattering ones you’ll never recover from, or you’ve suffered severe social rejection/isolation/bullying/ridicule/whatever because of them, or for your stims, or for ‘just being weird’ either.

It doesn’t matter if you have public meltdowns so bad that even the memory of them makes you cringe, and you’re embarrassed to go back there or see those people again, and often ‘burn your bridges’ as a result.

It doesn’t matter if you ‘can’t get your act together’ (especially as mostly what people mean by that is that you should stop being autistic), or if it always feels like your life is falling apart, or that you never got it together in the first place.

It doesn’t matter if you’re unemployed, or homeless, or you’re in some other horrible situation that you can’t escape, because you simply don’t have the skills or emotional resources or practical support to get out of it. Or you have gotten out but still suffer from PTSD or other mental unwellness because of it, or you feel ashamed of having been that, or been through that.

It doesn’t matter if you need daily help to move through life, and nor does it matter if you don’t have and can’t get that help, so that everything feels like a total mess, or the help available is demeaning and patronising or even abusive, or just not what you actually need.

Nor does it matter if you’re not oral-speaking, or only intermittently so, and you’re deemed ‘low-functioning’, or you’re incontinent/faecal smearing/head-banging/whatever, so no-one expects anything of you, and treats you like a child or like you have no mind of your own.

It doesn’t matter if you are or have been incarcerated in an institution or prison or mental health facility, for whatever reason, and you’re ashamed of that, and feel that you must be a ‘bad person’.

It doesn’t matter if you’re poor, or physically disabled, or old, or single, or don’t fit into the whole cis-hetero thing, or people constantly tell you that you’re ugly, stupid, etc, or that you ‘deserve’ the bad treatment you get.

It doesn’t matter, even, if you can’t love or even like yourself, or you maybe really hate yourself, or feel you lack the qualities that would render someone likeable or loveable.

Ultimately, none of that matters. You’re still worthy anyway.

No matter your situation, no matter your ‘issues’.

Because you still matter.

You still have worth. You are still worthy.

You are still worthy.

YOU. ARE. STILL. WORTHY.

And, at the risk of sounding like I’m belittling other liberation movements and their very real struggles – which I’m definitely not – ultimately, it doesn’t matter how many other minority groups you belong to either, because YOU ARE NOT ‘LESS THAN’ because of that, because of your oppression being intersectional. You are STILL worthy of better than whatever bad treatment has been handed down to you because of all of it. ALWAYS.

Because you deserve better than what you’ve had up till now. All of us do. All of us autistics deserve better, all of us are worthy of all the rights other human beings can claim, as well as the right to freedom from the oppressions particular to our lives. Most especially, you are worthy of being counted as human. Even when others do not and will not count you as such – in fact, most especially when that happens.

Because those attitudes, those people, really don’t matter either. Not when weighed against the fact that you – all of you, all of us - are most emphatically still real, still human, still entitled to being treated with decency and respect, still worthy of the space we occupy and the air we breathe, still worthy of people’s time and attention, still worthy of a life where we can openly and freely be our authentic autistic selves and live our lives the way we want and need to live them, still worthy of the right to hold our heads high and be proud of being autistic.

So all that other stuff doesn’t ultimately matter, when it comes to our demanding our rights.

And these rights are non-negotiable, for each and every single one of you. No exceptions. You don’t have to prove anything, live up to anyone else’s standards, become what they want you to be, in order to qualify. Your existence is enough.

Because you’re worth it. You’re worthy of it, of those rights. You all are.

And I’ll say so again and again, for anyone who needs to hear it, even if you’re hearing it through your tears, through your rage, through your fear and pain, through your shame and self-hatred. Because – I repeat - you don’t have to do or become anything in particular to be worthy of the same rights and freedoms that others have.

You just have to be you. Autistic, and human.

And that’s enough.

Never forget it.

THEY DO IT BECAUSE THEY CAN

Like a lot of people, I’ve been watching the Black Lives Matter protests. What strikes me every time I see the clip of that cop kneeling on George Floyd’s neck, is how little he’s worried about being on camera. He’s watching the bystanders, sure, but only, it seems to me, to judge whether they’re a further threat. Being videoed kneeling on someone’s neck till he dies? Nope, not a worry.

Why? Because cops like him have done this, and worse, to many black or brown people in the past, and gotten away with it. And I bet that he’s not even that worried now, because even in the rare cases where charges are laid, cops usually get acquitted, or a minor punishment. He’ll be expecting the same. It’s not over yet, not by a long shot.

Because pretty much everything done ‘in the line of duty’ has been excused or overlooked by complicit police administrations, passive civil authorities, and a judicial system reluctant to believe any wrongdoing on the part of police, even when confronted with glaring evidence of it. And so they  assume they can get away with practically anything.

The signs are there, for anyone to read. There’s some kind of corruption of spirit – there’s no other way to describe it –  at the very heart of policing. They see themselves as ‘heroes’ fighting against ‘wrongdoers’, who can be pretty much anyone else. (But especially black and brown people, I believe.) The result, of course, is that police themselves have now become an enemy to many.

This ethos is so pervasive, it’s even in fiction. Watch any cop TV show or movie, read any detective novel, a cop will lie or beat up someone at some point. Or the heroes-against-the-world thing will pop up. ‘It’s hard being a cop, no-one else understands’. Etc, etc, etc. And bear in mind that these shows are usually sympathetic to the police. Yet even there, the corruption has become the almost-unremarked-upon norm. (And before anyone says it, yes, I can tell fiction from fact. My point is that it’s so widespread in fact, it’s permeated into fiction.)

A note here – I went on my fair share of protests and demonstrations, back in the day. I’ve seen cops insult or verbally abuse people, threaten violence, commit it, do various dirty tricks, and even lie in court. There was a time in my life when if I saw a cop in the street I’d want to vomit and run away. So even though I’m whiter-than-white, I’m not surprised at all the videos that have emerged in recent years, though I am angry. I back BLM two hundred percent.

However – though I’m not wanting to divert the spotlight away from the Black Lives Matter movement at all – that is NOT my intention here – it’s worth noting that there is a deeper problem, an underlying pattern, which is not limited to the interaction of cops with black and brown people.

I was reminded of this recently when watching a documentary on Harvey Weinstein, and how he preyed on women for years. And he’s only one of the many, many authority figures – religious leaders, politicians, sports coaches, psychotherapists, entertainment top-dogs, etc, etc, who have long targeted the young and vulnerable of both sexes. And then there’s the abuse or even murder of autistics and disabled, by those who are supposed to be caring for them. Or the (mis)treatment of psychiatric patients, or the homeless… the list goes on. Practically anyone ‘different’ or ‘powerless’ can be, and frequently has been, a target.

In all these cases, those doing this harm do it because they can.

Because they’ve gotten away with it over and over again, for years, decades, even centuries.

Because they were in a position of unquestioned, unassailable, and unchallenged authority.

Because their victims were perceived as ‘lesser than’, ‘defective’, and/or just plain unimportant, not even worthy of life in some cases.

Because those who could have stopped them did nothing, in fact chances were they’d done it themselves, and thus it was ‘business as usual’.

Because even if their transgressions came to light, and complaints were made, the word of the powerful was always taken over the complainants.

Because even if a complaint was upheld, the transgressions were seen as minor/unimportant, or their actions were ‘justifiable use of power’.  

Because their victims were silenced in various ways – through threats, coercion, money, or just being ignored or ridiculed.

So it was okay for cops to beat up or kill black people, or for them to harass or beat up homeless people and destroy or take their belongings (and heaven help those who are black and homeless), for entertainment moguls to put aspiring actresses through the ‘casting couch’ ordeal, for priests to molest children and then simply be moved on to another parish, for professionals to put autistics through various torturous processes to make them ‘normal’. And so on, and so on.

Because the victims weren’t, and often still aren’t, considered important. They’re ‘the other’, the ‘different’, the ‘lesser than’, not worthy of the same rights as ‘normal people’, and thus it doesn’t matter what happens to them. And in the case of some groups, such as black people and autistics (once again, heaven help those who are both these things), even a ‘threat’ of some kind which has to be obliterated. So that others of their ilk can be kept in line. Subservient. Uncomplaining. Knuckling under to the Powers That Be.

THEY DO IT BECAUSE THEY CAN.

This is an important point to remember. Because they can, and have, gotten away with it for a long, long, long time. This corruption isn’t only in the police, but at the core of every imbalance of power. It’s a sickness at the heart of a world where those with power simply assume they have the right to not only define ‘the other’, but to shape and control their very lives. Up to and including whether they even get to live or not.

But at a certain point, the oppressed have had enough. They see that nothing but their rebellion will stop it. And so they say ‘no more!’ Black Lives Matter says no more. The ‘Me Too’ movement says no more. Autistic Rights says no more. Social movements since the 50s and 60s – civil rights, feminism, gay liberation – say no more.

And that’s the whole point of these protests – that black people, along with their allies, have had more than enough. They’re saying that it’s way beyond time to make the oppressors get their foot, or their knee, off black necks. Literally and metaphorically. To end this sickness, and root out this corruption.

If you still don’t understand this, if you’re still into ‘all lives matter’, or going ‘well they shouldn’t riot’, then you have missed the point entirely, and you’re going to end up on the wrong side of history.

I'm A Marginal Person

I live on the margins. I’m a marginal, a shadow creature, one of those who most people don’t even know exist, or are only vaguely aware of. I identify with all the other marginal – and marginalised - beings, who inhabit the world that lies beyond the harsh glare of nine-to-five, two-point-five mortgages, two-point-five kids and the house in the burbs. You know – the ‘normal’ world, inhabited by the straight white, cis, hetero, able-bodied, neurotypical, married, everyday people. Like you see on TV, in ads and programs and movies and so on. Normal people.

Please understand, I have nothing against them, I don’t dislike them or anything, in fact I find many of them fine people. I just don’t identify with them, and I can barely comprehend what it might be like to be them. And I guess they don’t really understand people like me either.

Us, that is. The not-so-normal ones. The socially rejected or scorned or ignored. The outsiders and the strangers and the simply ‘strange’. The autistics, the ADHDers, the dyslexic and the dyspraxic and the whole shebang of neurological ‘difference’. The gays and the dykes, the bis and the pans, the trans men and women, the aces and the aros and the happy-to-be-singles, the demis and greys and enbies and queers and all the rest. Or, for that matter, those who are not whiter than whitey-white, the immigrants, the disabled and chronically ill, the poor, the welfare beneficiaries, the homeless, the addicts and the mentally ill, not to mention the writers and artists and musicians and other creative types, and hell, even the hippies and nomads and rebels of all stripes, in fact pretty much anyone who finds their reality is not included in this supposedly wonderful ‘Norm’.

I don’t mean that I, personally, am all of these things (though I am quite a few of them), or that I know what it’s like to be all of these things. I mean that I most emphatically know the experience of being ‘not mainstream’, of being outside that norm, and so I empathise far more with these groups, collectively, than I do with the ‘normals’.

I also understand that many fall outside the norm in only one way, and wouldn’t consider themselves ‘marginal’ or even perhaps ‘marginalised’, and possibly are fighting to be included in the mainstream. How much any given individual feels marginalised tends to vary according to how many non-mainstream attributes you have. One, and you may reject any idea of being ‘marginal’. Lots, and you’ve usually given up on normal. Some don’t even care about it anymore, and some positively relish their marginal status. While if you have just a few attributes, you could be anywhere in-between. It’s a very individual thing, and no-one has the right to tell another how they should see themselves, or who they should identify with, or how they should live their life.

But all of us on the margins - beyond the boundaries of ‘normal’, in one way or another, and sometimes in multiple ways, being pushed further and further out beyond the back of beyond, in the eyes of ‘normals’ anyway - we inhabit our own universe. In that universe (or perhaps it’s a variety of different universes?), we connect, sometimes, with each other, and fail to at other times. We network, and fight, and disagree, and fall apart, and carry on anyway.

And our lives, our universes, are all too often invisible to the ‘normals’.  If they do encounter us, they sometimes refuse to acknowledge that our lives are actually different to theirs. “But everyone feels like that sometimes.” “Aren’t we all a little bit autistic?” “What do you mean, you don’t like sex/romance? Everybody wants a partner!” “I’d kill myself if I had your life.” “He/she’s just making a joke, it’s not really racism/sexism/homophobia.” “Non-binary? That’s not even a thing!” “But you’re in our country now, you should speak English.” And so on, and so forth.

But we know. We know our own truths. We live them. We know our day to day struggles are real – everything from wheelchair access to sensory overwhelm to pain management, from the lack of services to the lack of acceptance to the many micro-aggressions. And sometimes not-so-micro aggressions. We know it. Does it make us better people? Maybe. Sometimes. And sometimes not. All too many of us are simply left bitter, angry, hurt, sad and reeling away from the world. And even if we are stronger for it, I think most of us would still rather go without all the stuff we went through to get there.

Because we’re stressed out. It’s not fun to feel excluded, to never or rarely see our lives depicted in movies or on TV or in books or even just in a damn ad. (And why are so many movies and TV shows, even now, about The White Male Experience, especially the whole white-male-saving-the-day thing? I could write a whole book on this one, and no doubt someone already has. But do the movie and TV people ever think that even many of those who are white, might like to see something, y’know, different?)

Anyway, all this feeling invisible, ignored, overlooked, not valued or recognised, being the recipient of all sorts of bad treatment - prejudice, stereotypes, belittling, rejection, misunderstanding, mocking, ridicule or even outright violence – none of it is fun. But it happens. And it happens so often, and even if we complain about it, it’s obvious that the ‘normals’ don’t much care, really.

And that’s what cuts.

It’s not being different that’s the problem. It’s how others respond to us. We are what we are. Whether we hate it, love it, simply accept it or just wish we weren’t in a particular category, we are these things. And can’t be anything else. So why shouldn’t we feel pride in what we are? Why shouldn’t there be gay pride, indigenous rights movements, multi-cultural celebrations, autistic pride? Why should we not campaign for recognition, for human rights, for acceptance, and so on?

And what’s wrong with being different? Why are so many insistent we all be the same? What’s so great about being all alike? Why do the normals get to decide what we should aspire to, and why do they think they’re so wonderful that we should all be copying them anyhow? Did it ever occur to them that we just wanna be our own goddam selves, and not copies of them?

And I can’t help wondering, in the midst of this Covid crisis, whether it’s going to change anything for us. For most of my life, when I’ve looked around, I’ve seen a world increasingly skewed towards the superficial, the self-serving, the frenetically materialistic, and all too often the simply nonsensical. But this crisis has forced a change in many (apart from the usual idiots of course), it might even be that some serious changes will happen.

Our Prime Minister, Jacinda of international fame, has repeatedly urged us to ‘be kind’. And certainly there has been a surge of public-spiritedness evident, along with the Zoom conferences, the gee-we-can-work-efficiently-from-home-after-all, the endless hand washing and the social-distance-at-the-supermarket thing. But has this kindness been extended to real understanding and support for us marginal people? (Was it ever really anyway, except as patronising acts of inspo-porn, or other ‘feel-good’ exercises?) Will there be a wholesale change in how we’re seen? Or will this new-found public milk of human kindness vanish along with the need for hand sanitiser?

Who knows?

But whatever shape the future takes, one thing is certain – that I’m a marginal person, and always will be. The marginalised are my people, my tribe, and I’m happy with that, even if I’m not happy with how we’re treated.

How do you identify?