I recently did a post about why I loathe ABA. What I
noticed, in doing my research for it, is that there are an almost standard set
of replies you tend to get from the pro-ABA crowd, when you critique it. I’d
like to take those replies one by one, and analyse them.
1) “But
my ABA isn’t like that”. Often called the “not-my-ABA” response.
There is more than one possible reason for this.
a) You’re
doing the ‘Not-ABA’ ABA. It’s quite common for other therapies that aren’t
actually anything like ABA to get called that. If it doesn’t insist on
compliance and repetition ad nauseum, doesn’t try to ‘normalise’ the child, or
use any of the manipulative tactics I outlined in my post on ABA, then chances
are it’s not actually ABA. Count yourself, and your child, lucky. But be aware
that others aren’t so fortunate, and don’t generalise your own experiences to
all ABA.
b) You’ve got
the ‘nice’, ‘new’ ABA. The more modern ABA doesn’t use physical punishments,
and its manipulations tend to be disguised under a layer of niceness, smiles and
hugs. But don’t be fooled. If it still uses classic ABA techniques such as
discrete trials and emotional withdrawal, and still demonises autism and tries
to suppress autistic behaviours, it’s still ABA, and still harmful.
c) You’ve got
the classic ABA, but you’ve been brainwashed not to see it. It happens. A
lot of the ABA ‘therapy’ is actually training the parents into accepting that whatever the therapists do to the child
is ‘good for them’. A typical ‘defence’ from these brainwashed parents is to insist
there’s no difference between ABA and ‘normal parenting’ of the child. It should be
obvious that there’s a world of difference between training a kid not to run out
into traffic and trying to eradicate something that’s intrinsic to the child’s
very nature. But they try to deny it anyway. Here’s
a typical example, and an autistic response to it.
2) “But my child loves it/the therapist”.
Again, several possibilities.
a) You’re not
seeing the signs that say they don’t. Are you ignoring meltdowns? Are they
frequent, or were they frequent at first, but then the child ‘settled down’?
This is a danger sign – they’ve learnt that their fears and wishes will be
ignored, and that they can’t trust the adults around them to respect their
needs. It’s also possible that you’re simply not reading them right – our
emotions are frequently not visible to non-autistics.
However, the
first generation of younger autistics who have been subjected to ABA are now
grown up, and their opinion of ABA is pretty negative. Read here,
and here,
for more on this. Read
this too, by a parent who saw the light – unfortunately too late for their
young son.
b) They’ve
been brainwashed too. Here’s how it’s done. When children are being emotionally manipulated, having their
boundaries disrespected, and/or having the therapist withhold favourite toys,
etc, until they express the ‘right’ emotions, they often lose touch with what
they really feel, and might even have convinced themselves that they ‘like’ it,
after all, they’re always being told that they do, and adults are always right
- aren’t they?
c) They might
simply want the ‘goodies’ offered. This one is an extension of c), and the
result of the manipulation. When all your toys and favourite things are only
available to you during therapy, at the discretion of the therapist, yeah, you
might appear ‘eager’ for therapy too.
3) “But it works!” The Holocaust worked, if
your goal was to eradicate most of the Jews of Europe. The Hiroshima and
Nagasaki atomic bombs worked too, if your goal was to end the Second World War,
and never mind what it does to the Japanese people. Just
because something ‘works’ doesn’t mean it doesn’t cause immense damage along
the way. You need to ask yourself, is it worth the cost?
You also need to ask yourself, what
is your definition of it ‘working’? Is it the making over of your child
into a ‘normal’ one? Or stopping them from ‘obvious’ autistic behaviours, such
as stimming? Be warned that normalisation of this kind has a VERY high cost.
Your child is far more likely to self-harm, become aggressive, get abused,
become an addict, or acquire low self-esteem, depression, anxiety disorders or
other mental health issues, as they get older. Is this really what you want for your kid?
It might be of course that your
goals are simply things like getting them toilet trained. ABA is not the only
way or even the best way to achieve this. There are other
therapies out there that are far better and far more respectful of the
child’s autonomy and autistic way of being. It’s worth remembering that we tend
to be late developers, and even without rigorous ‘therapy’ of this kind, we can
eventually reach the goals you want us to reach – in our own time, and when
we’re ready.
It's also worth remembering that ALL
BEHAVIOUR HAS A REASON. Yes, even the faecal smearing, headbanging,
screaming, etc. If parents can figure out the reason for the behaviour, they
stand a better chance of diverting their child’s attention to something else
more socially acceptable or less harmful. Without that, you run the risk of
eliminating one undesirable behaviour, only to have it replaced with something
even worse, as the original need has not been met.
4) “But it’s scientific!” This is an outgrowth
of ‘but it works’ (see my comments above). A good question is, what do they
mean by ‘scientific’? It seems to largely mean ‘because we say it’s
scientific’, and/or ‘because our trials prove it works’. This supposed
‘effectiveness’ of ABA is largely unquestioned, by the people that do it and
the parents that support it, at least. (Plenty of autistics have other views of
course, but we’re largely ignored.)
There are three things wrong with
this. Firstly, self-validated ‘research’ is not convincing scientific research
at all. Just because someone says ‘my product is great!’, doesn’t mean we
should take their word for it. Secondly, at least one
trial has shown that ABA works no better than other therapies. And lastly,
of course, that ABA
is harmful even when it does ‘work’.
5) “It’s only a few high-functioning autistics who oppose
it”. This usually goes with something like “you don’t understand my
child”, or “the most severely autistic need this”. This is an issue I’m
planning to address in another blog post, so here I’ll only say that –
a) It’s more than a ‘few’, and not
just autistics, but many parents and former ABA therapists as well.
b) It’s not only the ‘high-functioning’
or even the very young who get ABA.
c) We get to define what harms us.
Not the therapists.
One final note - I have noticed when researching ABA that it’s
a tremendously mixed bag. Because it’s become so popular, all sorts of people
are offering it, with or without classic ABA training, and with all sorts of
modifications upon modifications, and even, as I have said, many therapies that
aren’t in fact ABA at all but are called that (in the US this is usually for
insurance reasons).
I acknowledge this. HOWEVER the
truth remains, that the more classic ABA elements there are in your ‘mix’, the
more harmful it is likely to be. Please, think very carefully before continuing
down this path. For your children’s sake.
Really good job on this. And I think these therapies that call themselves ABA need to be exposed, not because they're doing harm, but because it is incumbent upon them to be honest about what there therapy actually. Calling yourself ABA when it is not does a great disservice to parents who do not know any better. I get that you need to have your therapy covered to make it more accessible, but let's see a detailed description of what it is you are doing that you are disingenuously calling ABA. Also, I have written about the "science" aspect of ABA before on my blog. https://ageofneurodiversityblog.wordpress.com/2017/02/28/thoughts-on-the-science-and-evidence-of-early-intervention-and-aba/
ReplyDeleteThank you for this very useful summary. I agree with every point you have made. As a student the early 1980s, I saw Lovaas beat up a 12 year old boy in front of a professional audience including psychologists and psychiatrists. Not one challenged his violence; behaviourism was much more dominant then in the social sciences. Sadly.
ReplyDeleteDave Altieri of ABA Leaks (November 24, 2016). An actually autistic man defines and explains Applied Behavior Analysis.... Physics does not deny it is the reason for nuclear energy radiation leaks all over the planet and for effluent spills of deadly radioactive poison into the Pacific Ocean at Japan. Physics is not adamant of claim that their atomic bombs dropped on Japanese babies were "effective science," but ABA insists its extremely painful electric skin shock is for the benefit of its victims whom it teaches to act as though it's wrong for them to dissent from its ABA tortures, including ABA's network-wide "reinforcer-strengthening, motivating operations by way of food deprivations" which enable them to "increase pro-social behavior rates" in "misbehaving, abnormal children" by shoving morsels of cookie into the unsuspecting mouths of little boys and girls for "properly stacking blocks." As her long, narrow, pointed Day One of submission training finger pushes into their faces minuscule bits of behavior modification snack crumbs, one by one, discrete task by discrete task, as reinforcement for "accomplished" block movements which she marks and records onto her applied experimental human organism "data sheets," the astonished "subjects of her reports" wonder, "Mommy and Daddy, what is she doing to me? I'm so scared! I want her to leave me alone! Please help me! Tell her to go away!" https://rewardandconsent.blogspot.com/search?q=japan
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