A Manifesto of Self-Worth For Autistics

I don’t know who in the autistic community needs to hear this, but I am telling you now –

YOU ARE WORTHY.

You are worthy of your space here on this planet, of being treated with respect, and of treating yourself with respect, no matter what your situation, or your feelings, or how others are rating you or treating you.

Because autistics don’t have to be perfect, or anything close to it, to be worthy of that. Nothing we do, or say, or are, or have experienced, matters beside this fundamental fact. It matters only that we’re human, and we’re here.

So it doesn’t matter if you make mistakes in life. Even a lot of mistakes. Even if it seems you do nothing but make mistakes. Or your mistakes feel like earth-shattering ones you’ll never recover from, or you’ve suffered severe social rejection/isolation/bullying/ridicule/whatever because of them, or for your stims, or for ‘just being weird’ either.

It doesn’t matter if you have public meltdowns so bad that even the memory of them makes you cringe, and you’re embarrassed to go back there or see those people again, and often ‘burn your bridges’ as a result.

It doesn’t matter if you ‘can’t get your act together’ (especially as mostly what people mean by that is that you should stop being autistic), or if it always feels like your life is falling apart, or that you never got it together in the first place.

It doesn’t matter if you’re unemployed, or homeless, or you’re in some other horrible situation that you can’t escape, because you simply don’t have the skills or emotional resources or practical support to get out of it. Or you have gotten out but still suffer from PTSD or other mental unwellness because of it, or you feel ashamed of having been that, or been through that.

It doesn’t matter if you need daily help to move through life, and nor does it matter if you don’t have and can’t get that help, so that everything feels like a total mess, or the help available is demeaning and patronising or even abusive, or just not what you actually need.

Nor does it matter if you’re not oral-speaking, or only intermittently so, and you’re deemed ‘low-functioning’, or you’re incontinent/faecal smearing/head-banging/whatever, so no-one expects anything of you, and treats you like a child or like you have no mind of your own.

It doesn’t matter if you are or have been incarcerated in an institution or prison or mental health facility, for whatever reason, and you’re ashamed of that, and feel that you must be a ‘bad person’.

It doesn’t matter if you’re poor, or physically disabled, or old, or single, or don’t fit into the whole cis-hetero thing, or people constantly tell you that you’re ugly, stupid, etc, or that you ‘deserve’ the bad treatment you get.

It doesn’t matter, even, if you can’t love or even like yourself, or you maybe really hate yourself, or feel you lack the qualities that would render someone likeable or loveable.

Ultimately, none of that matters. You’re still worthy anyway.

No matter your situation, no matter your ‘issues’.

Because you still matter.

You still have worth. You are still worthy.

You are still worthy.

YOU. ARE. STILL. WORTHY.

And, at the risk of sounding like I’m belittling other liberation movements and their very real struggles – which I’m definitely not – ultimately, it doesn’t matter how many other minority groups you belong to either, because YOU ARE NOT ‘LESS THAN’ because of that, because of your oppression being intersectional. You are STILL worthy of better than whatever bad treatment has been handed down to you because of all of it. ALWAYS.

Because you deserve better than what you’ve had up till now. All of us do. All of us autistics deserve better, all of us are worthy of all the rights other human beings can claim, as well as the right to freedom from the oppressions particular to our lives. Most especially, you are worthy of being counted as human. Even when others do not and will not count you as such – in fact, most especially when that happens.

Because those attitudes, those people, really don’t matter either. Not when weighed against the fact that you – all of you, all of us - are most emphatically still real, still human, still entitled to being treated with decency and respect, still worthy of the space we occupy and the air we breathe, still worthy of people’s time and attention, still worthy of a life where we can openly and freely be our authentic autistic selves and live our lives the way we want and need to live them, still worthy of the right to hold our heads high and be proud of being autistic.

So all that other stuff doesn’t ultimately matter, when it comes to our demanding our rights.

And these rights are non-negotiable, for each and every single one of you. No exceptions. You don’t have to prove anything, live up to anyone else’s standards, become what they want you to be, in order to qualify. Your existence is enough.

Because you’re worth it. You’re worthy of it, of those rights. You all are.

And I’ll say so again and again, for anyone who needs to hear it, even if you’re hearing it through your tears, through your rage, through your fear and pain, through your shame and self-hatred. Because – I repeat - you don’t have to do or become anything in particular to be worthy of the same rights and freedoms that others have.

You just have to be you. Autistic, and human.

And that’s enough.

Never forget it.

The Central Dilemma of Being Autistic

 There’s a phrase that’s been echoing in my head a lot recently - you can only be what you are.

 This may seem so obvious as to be not worth saying, but it’s a privilege that most autistics aren’t allowed, or don’t dare allow themselves. Our authentically autistic selves are considered Not Acceptable to most of the world. We are all too often not permitted to be what we really are.

 Autism is defined as ‘abnormal’, and a synonym of abnormal is ‘unnatural’. And that’s how autistics are seen. NTs hold themselves as THE model of how to be, so in their eyes we’re a deviation from nature, a distortion of what a human being ‘should’ be, and hence we must be ‘corrected’, no matter the cost. It’s a kind of subconscious arrogance, manifesting as ableism. It involves a wholesale ignorance or refusal to acknowledge that the way we are is totally natural FOR US, both as individuals and collectively.

 Our idiosyncrasies and caprices, our strict orderliness or total lack of it, our raging sensitivity, our contrary minds, our brutal honesty or social obliviousness, our ways of talking or moving or connecting, our free-wheeling stims and our sudden spurts of joy, our abrupt hungers and our intense griefs, our deep diving into things like maths or cars or lampposts or history or outer space or music or brain chemistry… All the things that make us gloriously, outrageously, flamboyantly, achingly and overwhelmingly autistic, have been cast negatively, and seen as things to be eradicated, even when some of those things are also evident in non-autistics, and even when they’re harming no-one.

 The unspoken rule is, if an autistic does it, it’s wrong, simply BECAUSE they are autistic. The very state of BEING autistic is judged wrong. Is it any wonder that so often we can’t accept ourselves, when this is how our intrinsic state of being is framed? We’ve become conditioned, in one way or another, to feel inferior or just plain ‘wrong’ - regardless of whether or not we even know we are autistic. We’re taught to despise our true selves anyway, or at least to become determined to hide them, to avoid the inevitable repercussions.

 This often leads to the phenomenon known to autistics as ‘masking’, which is nothing to do with Covid, but rather the various ways in which many of us try to conceal our autistic behaviours and thought patterns, to present ourselves as ‘normal’. We might be pressured to do this by others, or we might do it to ourselves, in order to fit in, keep a job, etc, or just to avoid hassles or abuse. The cruel irony is that over time it can develop into such a polished performance, that even if we do come out, people won’t believe we are autistic, and sometimes we don’t know how to stop doing it, or who we are or might be without the masking.

 There are also autistics who can’t mask, or who can’t do it very well, or simply refuse to, and they can pay a huge price for that - which tends to make those of us who can try even harder, to avoid that fate. But even if we’re able to mask successfully, that also comes at a huge cost. Addiction, depression, anxiety, burnout, PTSD, self-harm, other mental illnesses, and the consequences of those, are rampant in the autistic community, and our average lifespan is only in our thirties.

 Thus the central dilemma of all autistic lives is, how much can we be real? And if we can’t or don’t mask, or the mask slips, how much and in what ways will we be punished for it?

 This dilemma presents itself in innumerable ways, small and large, on a daily basis. Punishments can be anything from a blank look or being ignored to physical attacks, abuse or even murder. We know that we run huge risks just by existing as autistic. Small wonder then, that some of us become surly, defensive, prickly and ‘unco-operative’, while others mask just to survive. Please note in no way is it my intention here to judge anyone’s choice on this - as a friend of mine said recently, “Masking is not wrong. What is wrong is that we have to do it.” And I’d say the same about being ‘un-cooperative’, or whatever other behaviour choices individual autistics make in order to get through each day with any shred of self-respect or sanity intact.

 So how can we be authentically autistic, in such a world? How can we get people to accept us as we are? The short answer is that they won’t – unless we DEMAND that they do so. And in my experience, the best path to building the inner strength to be able to do that, as individuals and as a group, lies in finding our anger.

 Anger is empowering. Anger is cleansing. Anger is also freeing. Anger allows us, after years of taking crap, to say “you know what? I don’t want to do this anymore”, or “this situation stinks”. It’s the little voice that starts saying “what right do non-autistics have to tell me how I should be anyway?” It tells us that we deserve better, that we have a RIGHT to be treated better. A whole heap better than what we’re currently getting.

 And yes, I know that for many if not most autistics, expressing that anger can be very risky. So much so, that some of us daren’t allow ourselves to even feel it, maybe thinking that we don’t have a right to it. While other autistics feel so much rage and bitterness, that it explodes ‘inappropriately’, and they’ve paid the price for that. Some of us alternate between these two states, to our detriment both ways. There isn’t a perfect remedy for this, but I have found that the most productive solution is to channel the rage into freeing our authentic autistic selves. So much of our rage (and our suppression of it) is because we haven’t been allowed to, or haven’t dared to let ourselves, be real. We have to demand acceptance, for all our sakes.

I recognise that I’m in a privileged position - I’m old, don’t have a job, etc, and personal safety aside, don’t much care anymore what anyone thinks of me. Thus I have little to lose. And I know that many others have way, way more at risk if they take off the mask, or allow themselves to get angry. And I’m not dismissing the very real risks of doing so, especially with the way things are right now around the world. Believe me, I do not.

 But at some point, in some way, we have to start being true to our real selves to at least some degree, or we’ll die inside. Or just die.

Because whichever way we go, there’s a price to pay. People often sense something ‘off’ about us anyway, no matter how well we mask, no matter how hard we work to divert their attention from our ‘faults’, to squeak through another day, and another, and another, and another…. How long before they realise we’re not THAT normal, and the punishments start? And even if we do manage to slide by, how long can we keep up the façade? How long before it all just becomes too much, and we break down? Burnout alone can be a huge price to pay.

 Now, I’m not saying that we all need to become hotshot activists/advocates, shouting to the world. That’s not a route everyone can or wants to take. There needs to be a recognition that everyone’s path to unmasking will be different. The process of unravelling the mask can be as slow, complex and experimental as building it was in the first place. And connecting to your anger can be just as difficult and just as prone to trial and error.

 It might be that you start with something small but quietly revolutionary, like allowing yourself to stim when you’re alone (for years, I didn’t even let myself do this), or to quietly, privately, dive into a special interest you’ve denied yourself. Or you could allow yourself to wear clothes or hairstyles others consider weird. You could create a blog, or YouTube videos, or paintings, or music, or whatever, which expresses something of your true self. Or perhaps you’ll leave a job that’s not right for you, or simply begin to be more honest with those around you, even if they do start looking at you funny, or, well, just about anything that allows you at least a little ‘wriggle room’ to BE you. To be authentically, wonderfully and uniquely autistic, to whatever degree you can manage - and you’ll probably find that degree widening over time.

 Because you can only be what you are – despite the world’s, or your own, strenuous effort to make you otherwise, and no matter how much you might hate yourself, and wish to be something else. I did all of those for most of my life, until I finally realised the futility of it. Why fight your true nature? Why not accept it, and work with it instead? You don’t have to love or even like everything or anything about yourself, I’ve discovered, in order to accept yourself. (You might ask, how can I accept negative things like meltdowns? You can accept the part of you that is sensitive, and work with it, not against it. This applies to all of your autistic traits, for that matter.)

Repeat after me – YOU ARE FINE JUST AS YOU ARE. THERE’S NOTHING WRONG WITH BEING AUTISTIC. And anyone who tries to tell you so, is wrong, wrong, and wrong. Find your rage. And channel it into being your true self. Because you cannot ever be anything other than what you are. And it’s time to stop pretending to be anything else.

What It Feels Like To Be Emotionally Abused

I don’t normally watch the TV ‘soapies’, but a storyline on one of them caught my eye recently. It’s about an older woman who’s been emotionally and verbally abused by her husband to the point where she breaks and lashes out at him with a wine bottle. At the point of writing this, she’s in jail, awaiting trial for attempted murder – and viewing herself as a ‘bad’ person who deserves punishment. The other characters on the soapie have mostly turned against her, as even before the wine bottle incident, he had quite expertly cast himself as the ‘victim’, and her as various bad things. Even the police don’t pick up on the clues.

As a survivor of emotional abuse myself, I find it too painful to watch, though of course I’m hoping the truth will eventually emerge. But I don’t have much hope of it, as it can be really hard for anyone who hasn’t been through this to understand what it’s like. While my situation never got as far as wine bottles, it nonetheless nearly destroyed me. So I want to explain something of what it feels like to be the recipient of emotional and verbal abuse.

The first thing that needs to be understood is that it’s essentially a betrayal. I’m not talking about sexual betrayal here, but a betrayal of the very trust that should exist between partners. When you enter into a relationship, there’s a basic assumption that they will deal with you fairly and honestly, that they truly care for you and that anything they tell you is the truth. So when they start telling you that you’re this or that Bad Thing, that you’re no good at this or that, you believe them. They must be telling you this For Your Own Good, right? Or at least that’s what they tell you, and they love you, so it must be true, right? Overwhelmed by this flood of new ‘information’ about yourself, you lose all sense of who you were before in the struggle to correct your ‘faults’, to become what they’re telling you that you ‘should’ be.

It's especially easy for them if you already have low self-esteem and are inclined to believe the worst about yourself. (Abusers hone in on such vulnerable people, of course.) Add in being autistic (as in my case), even if you don’t know it at the time, but do know that you have trouble ‘reading between the lines’ and making good judgements about yourself and others, and you’re primed to believe that they are seeing something you can’t, even if it doesn’t ‘feel right’. Under a relentless barrage of criticism, you cave. They must be right, you must be bad, bad, bad. Having been reduced to a state of helpless abasement, you don’t find much to admire in yourself anyway.

Their attitude that they’re positively saintly for putting up with you, that nobody else would, means that over time, you come to believe that others must have seen these faults too, but been too polite to tell you. You become ashamed, not wanting to inflict your flawed self on anyone else, and will probably seem withdrawn and anti-social to others. Thus it’s easy for your partner to cast your actions or words in the worst light to others in turn, subtly running you down, and further isolating you. With no other opinions to compare your partner’s to, your judgement becomes skewed, and you continue to believe the worst. I eventually came to see myself as worthless, as a partner, as a mother, as a friend, and quite possibly even as a human being.

Many people seem to think that verbal and emotional abuse is ‘not as bad’ as physical abuse. “It’s just words.” Even the victim/survivor may think this, or be reluctant to reveal it, or even to see it as abuse. Those harsh words can actually often go hand-in-hand with physical violence, but even without a blow struck, they can be devastating. Without wanting to minimise the hurt from physical abuse at all, damage from a broken limb can heal faster than damage from a broken heart. Because that’s what abusers do to you. They break you. They shatter your heart, your psyche, your very sense of self, your will. I would say they reshape you to their liking – but you’re never to their liking. They’re never satisfied, there’s always more criticism. Nothing about you is sacred.

Even after you scrape up enough shreds of self-esteem to get out of the relationship, it can take a long, long, long time to realise what’s happened to you, and what you’ve lost. To give just one small example, my partner had me convinced that I was hopeless as a ‘home handywoman’. If I even started to do a job around the house, she’d sigh impatiently, and snatch the tool off me with a contemptuous “oh, give it here!” Afterwards, it took me more than two years to remember that before her, I’d actually been moderately competent at doing stuff. Not as expert as her maybe, but I’d known what to do with a screwdriver or hammer, I’d rewired electric plugs, swapped a faulty cord on an iron, and even done up old furniture. But under the onslaught of her contempt, I’d forgotten all that. I’d forgotten the very idea of being competent – at anything.

And it can be an even longer time healing. Even now, more than twenty years later, I still find myself squirreling out damaged parts of my psyche. For instance, I still have to remind myself that if I do something that’s not ‘how others (deep down, I mean ‘her’) would do it’, it’s okay. No-one’s watching me, about to pounce and tear me apart for it, I don’t have to constantly defend my actions or words anymore. But despite my best attempts to dismantle it, the kneejerk fear-reaction is still entrenched in me, not to mention the belief that the way I do things is ‘wrong’, even if it feels right to me. That’s how deep the damage can go. This is a battle I’m still fighting. Even writing this has stirred up old, painful memories.

My wish is that people will come to understand that emotional and verbal abuse is just as devastating, just as emotionally destructive, as physical abuse. That it can wreck people, wreck their lives, wreck their relationships with others, even wreck their physical health, and leave them feeling, afterwards, like a piece of wreckage washed up on a beach, no good to themselves or anyone else.

Never underestimate the power of ‘mere words’.

THEY DO IT BECAUSE THEY CAN

Like a lot of people, I’ve been watching the Black Lives Matter protests. What strikes me every time I see the clip of that cop kneeling on George Floyd’s neck, is how little he’s worried about being on camera. He’s watching the bystanders, sure, but only, it seems to me, to judge whether they’re a further threat. Being videoed kneeling on someone’s neck till he dies? Nope, not a worry.

Why? Because cops like him have done this, and worse, to many black or brown people in the past, and gotten away with it. And I bet that he’s not even that worried now, because even in the rare cases where charges are laid, cops usually get acquitted, or a minor punishment. He’ll be expecting the same. It’s not over yet, not by a long shot.

Because pretty much everything done ‘in the line of duty’ has been excused or overlooked by complicit police administrations, passive civil authorities, and a judicial system reluctant to believe any wrongdoing on the part of police, even when confronted with glaring evidence of it. And so they  assume they can get away with practically anything.

The signs are there, for anyone to read. There’s some kind of corruption of spirit – there’s no other way to describe it –  at the very heart of policing. They see themselves as ‘heroes’ fighting against ‘wrongdoers’, who can be pretty much anyone else. (But especially black and brown people, I believe.) The result, of course, is that police themselves have now become an enemy to many.

This ethos is so pervasive, it’s even in fiction. Watch any cop TV show or movie, read any detective novel, a cop will lie or beat up someone at some point. Or the heroes-against-the-world thing will pop up. ‘It’s hard being a cop, no-one else understands’. Etc, etc, etc. And bear in mind that these shows are usually sympathetic to the police. Yet even there, the corruption has become the almost-unremarked-upon norm. (And before anyone says it, yes, I can tell fiction from fact. My point is that it’s so widespread in fact, it’s permeated into fiction.)

A note here – I went on my fair share of protests and demonstrations, back in the day. I’ve seen cops insult or verbally abuse people, threaten violence, commit it, do various dirty tricks, and even lie in court. There was a time in my life when if I saw a cop in the street I’d want to vomit and run away. So even though I’m whiter-than-white, I’m not surprised at all the videos that have emerged in recent years, though I am angry. I back BLM two hundred percent.

However – though I’m not wanting to divert the spotlight away from the Black Lives Matter movement at all – that is NOT my intention here – it’s worth noting that there is a deeper problem, an underlying pattern, which is not limited to the interaction of cops with black and brown people.

I was reminded of this recently when watching a documentary on Harvey Weinstein, and how he preyed on women for years. And he’s only one of the many, many authority figures – religious leaders, politicians, sports coaches, psychotherapists, entertainment top-dogs, etc, etc, who have long targeted the young and vulnerable of both sexes. And then there’s the abuse or even murder of autistics and disabled, by those who are supposed to be caring for them. Or the (mis)treatment of psychiatric patients, or the homeless… the list goes on. Practically anyone ‘different’ or ‘powerless’ can be, and frequently has been, a target.

In all these cases, those doing this harm do it because they can.

Because they’ve gotten away with it over and over again, for years, decades, even centuries.

Because they were in a position of unquestioned, unassailable, and unchallenged authority.

Because their victims were perceived as ‘lesser than’, ‘defective’, and/or just plain unimportant, not even worthy of life in some cases.

Because those who could have stopped them did nothing, in fact chances were they’d done it themselves, and thus it was ‘business as usual’.

Because even if their transgressions came to light, and complaints were made, the word of the powerful was always taken over the complainants.

Because even if a complaint was upheld, the transgressions were seen as minor/unimportant, or their actions were ‘justifiable use of power’.  

Because their victims were silenced in various ways – through threats, coercion, money, or just being ignored or ridiculed.

So it was okay for cops to beat up or kill black people, or for them to harass or beat up homeless people and destroy or take their belongings (and heaven help those who are black and homeless), for entertainment moguls to put aspiring actresses through the ‘casting couch’ ordeal, for priests to molest children and then simply be moved on to another parish, for professionals to put autistics through various torturous processes to make them ‘normal’. And so on, and so on.

Because the victims weren’t, and often still aren’t, considered important. They’re ‘the other’, the ‘different’, the ‘lesser than’, not worthy of the same rights as ‘normal people’, and thus it doesn’t matter what happens to them. And in the case of some groups, such as black people and autistics (once again, heaven help those who are both these things), even a ‘threat’ of some kind which has to be obliterated. So that others of their ilk can be kept in line. Subservient. Uncomplaining. Knuckling under to the Powers That Be.

THEY DO IT BECAUSE THEY CAN.

This is an important point to remember. Because they can, and have, gotten away with it for a long, long, long time. This corruption isn’t only in the police, but at the core of every imbalance of power. It’s a sickness at the heart of a world where those with power simply assume they have the right to not only define ‘the other’, but to shape and control their very lives. Up to and including whether they even get to live or not.

But at a certain point, the oppressed have had enough. They see that nothing but their rebellion will stop it. And so they say ‘no more!’ Black Lives Matter says no more. The ‘Me Too’ movement says no more. Autistic Rights says no more. Social movements since the 50s and 60s – civil rights, feminism, gay liberation – say no more.

And that’s the whole point of these protests – that black people, along with their allies, have had more than enough. They’re saying that it’s way beyond time to make the oppressors get their foot, or their knee, off black necks. Literally and metaphorically. To end this sickness, and root out this corruption.

If you still don’t understand this, if you’re still into ‘all lives matter’, or going ‘well they shouldn’t riot’, then you have missed the point entirely, and you’re going to end up on the wrong side of history.