All autistics are traumatised.
This is the conclusion I’ve come to, after over ten years of
being in the autistic community, listening to people’s stories, doing research,
reading what parents of autistic kids have to say (and how they’re so often misinterpreting
our behaviour), commiserating with our problems and woes, and thoroughly absorbing
the general state of autistic lives and psyches.
We’re constantly being overloaded, stressed out, misunderstood,
rejected, ridiculed, having our voices or our non-verbal attempts at communication
ignored, having our intelligence denied or used as a putdown or an excuse not
to give us services we desperately need, hearing ourselves described as ‘defective’
or ‘diseased’ or ‘damaged’, being excluded from schools, social gatherings or
jobs, being bullied/beaten up/abused by family members or partners or schoolmates
or so-called ‘friends’, with many of us ending up unemployed, poor, homeless,
in mental health care or jail. We’re pushed to our limits and then over them. Constantly.
Repeatedly. And then we’re told that “we’re not trying hard enough”, or that “we’ve
brought it on ourselves”, and so on. The list is endless, you all know what we’ve
had to endure, both individually and collectively.
There are undoubtedly some very young and/or lucky autistic
kids with lovely, accepting parents out there, that haven’t yet been
traumatised, but sooner or later, they will meet up with the circumstances that
cause that trauma. They’ll be yelled at in a supermarket, encounter an unsympathetic
teacher, get bullied in the playground or street, get overwhelmed in a mall and
have their reaction misunderstood, (over)hear someone call them horrible things
on TV or during ‘mom chats’ over coffee… and it will start.
I believe such traumas are inevitable, given the current public
attitudes to autism and autistics. The only things that differ are to
what *degree* we’re traumatised, and what our individual reaction to it is, at any
given point in our lives.
But – and here’s the ghastly bind we’re in - too many people
look at our traumatised state: the meltdowns, the fleeing, the banging our
heads on walls, our extremes of emotion, our physical and sometime verbal
lashing out, our problems in school or social situations or public places, or our
co-occurring conditions or mental health problems, etc, etc, etc, and think/assume
‘Oh, that’s because they’re autistic, it’s an intrinsic part of their being
autistic, therefore there’s nothing that can be done about it, look at them,
they’re a huge problem for society, wouldn’t it be better if we could get rid
of them/their autism/ensure more autistics aren’t born?’ And/or they see us
only as ‘problems to be managed’ – something that tends to increase our trauma,
not diminish it. With this attitude, about the best that can be expected is
that they’re ‘nice’ to us, ie use us as inspiration porn.
This is so endemic, it even affects how we’re diagnosed.
The indicators of our trauma are so engrained in the public and professional
minds, they’ve become ‘diagnostic criteria’, so that kids or adults who don’t
display such behaviours can either lose their diagnosis, or never get one in
the first place. Even if our not displaying it is due to the pressures of ‘normalisation’,
where we’ve been taught (or taught ourselves, in some cases) to hide our autistic
traits and suppress those ‘symptoms’, at the expense of our long-term mental health.
(Ie hiding the results of our trauma actually causes more trauma in the
long run, which should be a no-brainer, but hey, you know, we’re not supposed
to be human…)
But what if we were NOT constantly traumatised?
What if our autism was accepted from the beginning of our
lives, and our families, childcare workers, teachers, etc, were educated about
autism by autistics, and we were properly supported and accommodated
through school, higher education, and into work? What if doctors, other professionals
and autism organisations were truly educated about autism, and gave
parents a positive view of autism, and referrals to autistic organisations,
instead of all the doom-and-gloom stuff?
What if we were not assumed to be lacking in intelligence
because we can’t use oral speech, or whatever speech we do have is limited, or ‘babyish’
sounding? What if we were taught to use sign language, cards and/or AAC systems
right from when it first becomes obvious that we’re struggling with oral
speech? What if we’re standardly given OT and various aids as soon as it’s seen
we have trouble with movements? What if we were not laughed at because we’re
adults who can’t tie our shoelaces or button our shirts? What if it was considered
okay for adults to always wear polo- or t-shirts or slip-on shoes, and need help
to cook/shower/whatever?
What if NT kids were taught social skills for interacting
with us, while we were taught ‘this is how non-autistics think and feel
and act, it’s up to you how much you want to do it’, rather than being effectively
told that our way of being is ‘wrong’ or ‘defective, and forced into unnatural styles
of interaction, simply to hopefully (and usually unsuccessfully) avert bullying
and social rejection? What if NT adults were given awareness training
too, in workplaces where autistic people work, or because they’re likely to
come into contact with us in a professional situation, eg, cops, nurses, teachers,
paramedics? What if it were simply a regular part of their training?
And what if supermarkets and malls and other shops had ‘quiet
hours’ all the time? What if public ad campaigns about autism, similar
to those about mental health, written by autistics and/or their allies, were
regularly broadcast on TV? What if we had mentors to help us negotiate both social
scenes and acquire practical skills, from getting our first job to getting a
mortgage? For that matter, what if it became accepted practise for us to be
considered for a job on our CV, references and a job trial, rather than be put
through the torture of interviews, which we tend to fail?
I could go on, but you get the idea I’m sure. What if we
weren’t being constantly traumatised? What if the whole public image of autism
and autistics was turned around, and people actually accepted us as we are, and
not only stopped abusing us, but gave us the support we really need? What kind
of autistic would emerge? Who and what would we be?
I think we could be amazing. Actually, I think we already
are, we just need the world to stop constantly dumping a tonne of excrement on us.
Because if they did… we’d be even more amazing.
Excellent post definitely going to share it!
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