I’ve always been suspicious of ABA, but I’ve held back on
commenting on it much in the past, because I wanted to know what I was actually
objecting to. But I’ve found that the more I researched it, the more my horror
deepened. The result is that I am now more opposed to it than ever, for the
following reasons. (Bear with me, this could be kind of long.)
1) Its Behaviourist Origins. The roots of ABA are in
the behaviourism of psychologists like B. F. Skinner. I wasn’t impressed by
this theory when I first encountered it at university more than 20 years ago,
and I’m even less impressed now.
Behaviourists are only interested in measurable human
behaviours, and regard underlying causes of these behaviours as irrelevant, or
as something that will change if the behaviour is changed. Lovaas followed
their ideas when ‘treating’ autistic children. He even saw autistics as
‘not-people’, empty shells, or raw material that, in his own words, he could
‘assemble into a human being’.
ABA’s behaviourist approach tells them that autistic
behaviours can be ‘extinguished’, and the child will then become ‘normal’ as a
result. So, for instance, if an autistic child is stimming, ABA ignores WHY the
child is stimming, ie what need it fulfils, and simply works to suppress it.
2. Its lack of understanding of autism. Because ABA
sees autism as just behaviours to be extinguished, ABA therapists usually have zero
training in what autism actually IS. In fact, many of them have few
qualifications and little training at all, in anything other than delivering
the ‘therapy’. They consequently lack any understanding of the underlying
neurology. They fail, most of all, to understand that autism is intrinsic to
our very beings.
Even where ABA therapists do consider our motivations for
behaviours, they invariably get them wrong. And they not only don’t really understand
us at all, but refuse to try, or to listen to us when we try to explain. (They
tend to simply reply with more jargon instead.)
3) Its Alarmism. ABA therapists will tell you that
your child only has a certain developmental ‘window’, and that if you don’t put
them through intensive ‘intervention’, as young as possible, they are ‘doomed’.
They paint a scary picture of your child becoming a faecal-smearing,
head-banging, non-verbal, non-toilet-trained, highly dependent adult, if they
don’t have this therapy.
It’s nonsense of course. It entirely ignores that autism is
a developmental DELAY, and that there is no predicting how any child will
develop in the future. They may not progress even if they’re ABA’d to the max,
or they may progress just fine without it, but in their own time. Because a
child is not doing ‘x’ at a given point, doesn’t mean they will never do it.
Autistic personal histories are replete with instances of sudden leaps in
abilities and skills. I have experienced them myself.
But ABA promoters don’t want you to know that, because that
would take money out of their pockets. Make no mistake, ABA is primarily a
money-making enterprise, and autistic children and their real needs and
developmental trajectories come way down the list of importance. (It also seems
to have some of the hallmarks of a cult, but that’s a post for another day.)
4) Its Creation of Compliance Junkies. ABA places
great emphasis on training the child to do exactly what the therapists and
other adults around the child want, when they want, as they want it. The child
is not allowed to say no or refuse to participate. It uses repetition ad
nauseum, till the child learns to ‘behave’, ie to do what is demanded, over and
over, regardless of whether what is demanded makes any sense to them, or is
even useful to them. They learn that their needs and wishes will be ignored,
and that they must comply or else.
The end result is that ABA’s compliance/approval junkies lose
touch with what they really feel. They become approval seekers, always doing as
they are told, ignoring their own feelings and invasions of their personal and
physical boundaries, and thus they become ripe targets for any abuser.
5) Its Abusive Nature. Forty plus hours of ‘work’ per
week? Much of it boring and repetitive in the extreme? What other young children
have that expected of them? The rigid insistence on the therapist/parent
‘winning’ against the child’s desire to get out of it is abusive in itself. The
child’s will is systematically broken.
And that’s without the physical forcing often done – I have
watched video after video where the child is pushed to do the ‘right’ thing
with ‘hand over hand’ (ie the therapist forces the child’s hand to pick the
right card etc), or pushed into or pulled out of a chair. Even supposed ‘rewards’
can be physically invasive, tickling and grabbing the child for a bearhug was
also common.
Manipulation is also frequent, and can be a form of abuse. Emotional
withdrawal when the child does something ‘wrong’, or taking away the child’s favourite
things and doling out time with them as a ‘reward’ for compliance, are common
tactics. Any distress the child displays over this is ignored. Meltdowns are
also ignored, as ‘unwanted behaviour’ that must be ‘extinguished’. They are not
seen as the cries for help they actually are.
Originally, ABA was accompanied by hitting or yelling if the
child didn’t comply. Some (though not all!) modern ABA tends not to do that,
leading some proponents to claim it’s ‘different’ to ‘old’ ABA, and hence not
harmful. But don’t be fooled. Physical violence or no, mental/emotional abuse
is frequent and almost intrinsic to the therapy.
6) Its Ignoring Consequences. Some of the first
children who went through the whole ABA-for-years thing are now young adults.
Many of them now suffer from PTSD, depression, anxiety disorders, low
self-esteem, fear and mistrust of adults, or other mental health issues. Yet
the ABA industry has never done any follow-up on the long-term consequences of
their ‘therapy’, that I’m aware of.
They also refuse to acknowledge that extinguishing an
essentially harmless behaviour can see it replaced with another and far worse
one, if the original need is still unmet. Suppressing stimming, for instance,
can lead to an individual developing self-harming habits instead, such as
cutting or gouging their skin. Or they might develop addictions, aggressive
behaviours, suicidal ideation, etc.
But even these things, bad as they are, still don’t get to
the heart of what I loathe most about ABA, which is this…
7) Its Demonisation of Autism. Autism is cast as a
Big Bad Thing, a horrible ‘disease’ or epidemic, which has ‘stolen’ your child
and which only ABA can ‘rescue’ them from. Parents are told that autism is ‘ruining’
their child’s life, and potentially that of the parents and the rest of the
family also. So ABA is saturated in the autism-negative mindset. It promotes
normalisation, at the cost of the child’s autonomy and natural way of being. It’s
not alone in this, of course, but it does play a big role in perpetuating all this
negativity.
The truth is that autism simply *IS*. It comes with its
share of difficulties and problems, but it’s not a horrible thing to be in
itself. The horrible part of being autistic is how we are treated, including by
ABA therapists and parents who, having swallowed the rhetoric, have lost sight
of the child in front of them, at least for now. Some do come out of this
trance later, and regret what they’ve done, when they see the results in their
kids. But many seem to be almost brainwashed – as do their kids.
ABA proponents have a standard set of answers for criticisms
like the above, which I’ll get to in another post (this one is long enough!).
For now, I have this to say –
Autistics have the right to BE autistic. They have the right
to behave autistic, to develop at their own pace, to receive support that
actually helps them, and to be free of being coerced into behaving like the NTs
they are not. They do not deserve to have an essential part of their very being
quashed, denied, hated and forced into repression.
Please, parents, don’t ABA your kids. For their sakes, and
your own.
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