A few months back, I accidentally jammed my fingers in a sliding door at
home. As I bent over in pain, I suddenly realised that I did not want anyone there, to ‘comfort’ me. By this I mean that
when I am physically hurting, my skin becomes acutely painful, I can’t bear to
be touched or ‘fussed over’, or have someone put an arm round me, etc, it only
magnifies my pain. But it’s also other people’s emotional reactions I find
difficult – the “oh, what’s wrong, how can I help, tell me where it hurts,” sort
of thing. I know they mean well, I know it’s ‘empathy’, it’s just that when
I am in pain, maybe crying, I don’t have words, and don’t want to find them. Even
attempting to do so actually takes me away from the pain, I move from
‘right-brain-reaction’ to ‘left-brain-explaining’, and thus the connection to
my own emotional reactions to pain (or to anything), established only with
difficulty in the first place and often faulty, is lost, and those emotions go
deep into some inaccessible place, perhaps never to be retrieved. (Plus, I then
often come across as very ‘rational’ and ‘detached’ in describing the pain,
which leads some to believe I’m not hurting at all.)
But since that injury, I’ve also come to recognise that something
similar goes on with many of my emotional
pains. By this I mean my deepest feelings, or my ‘intense’ or ‘over-the-top’
emotional reactions, often (though not always) the stuff that can lead to
meltdowns or shutdowns if I’m not careful, and which I’ve only just learnt not to be ashamed of. Over the last few
years, I have been able to share a great deal of my thoughts and feelings with
other autistics that I’d previously kept buried, out of that shame. But still
there’s a lot of other feelings and emotions I don’t share. It’s as if I have
this deep reserve of ‘stuff’ I’ve always kept pretty much private, and which I
probably always will keep mostly private. And I suspect, from reading between
the lines, that many other autistics have a similar cache of deep feelings they
don’t share either, or not much, sometimes not even with their closest autistic
friends or their partners (or perhaps only
them).
So I started thinking about why that’s so, what stops us from sharing.
And it seems to me that there are four main factors.
(1) Alexithymia – the difficulty we have with recognising, dealing with
and expressing those emotions. We don’t know what we feel, or we can’t find the
words for what we feel, or we find them far too late.
(2) The bad reaction we get when we do express them. You know what I
mean – the puzzled frown, the blank ‘what-planet-do-you-come-from’ stare, the getting
told “You’re so weird” or “You can’t possibly feel that, no-one feels that way,
it’s not normal, what is wrong with you?”, the laughter or snide
comments, the sneer as they turn away and proceed to ignore you, perhaps even using
what you’ve said against you at some later point… If we get this every time we
try to share our deepest selves, it’s not going to encourage us to try.
(3) The afore-mentioned shame, often as a result of (2). We become
ashamed of our ways of reacting to the world, of how we see things and handle
things, of our emotions, and of our very selves. I’ve written on this autistic
shame before, suffice to say here that it encourages us to conceal our deeper
emotions and feelings.
(4) But beyond all that, I feel there is a deeper reason why we don’t
share, one not talked about much even amongst autistics, which is simply that sharing
emotional stuff doesn’t come naturally to us. Think about it. We are the
toddlers who, when we spot something interesting, don’t go “Wooka dat, Mumma! Ooh!” We’re the children who aren’t out in the middle of the
playground yelling “Look at me, everybody! I can stand on my head!” Instead, we
are drifting around the edges of that playground, barely noticing the other
kids. We’re the teenagers becoming more aware of others but also finding them
and their emotional demands confusing, and barely beginning to understand what
‘having a friend’ entails. We’re the adults who often find counselling or
psychotherapy unhelpful, and I don’t think it’s only because the therapists often
aren’t knowledgeable about autism, or that we just haven’t found the ‘right’
methods. We can learn to connect with our emotions, yes, and learn to talk
about them, but it doesn’t seem to really come naturally to us. We have to work
on it.
I feel this could be another area where we differ from NTs, and where we
are perhaps doing ourselves a disservice in attempting to be like them. For NTs,
‘sharing’ their deeper selves and ‘connecting’ with others is essential for
their emotional health, and it doesn’t occur to them that we might not find it so
essential. In fact the reverse may be true - it’s been my experience that many
times, I don’t feel better for having talked about my emotions, or revealed
them to others. Sometimes that’s because their reactions are negative. But also
it was because it just didn’t make me feel
any better. It just didn’t (and often still doesn’t) ‘feel right’ to talk
about such deeply personal stuff.
Yes, sometimes, it can be helpful
to talk about our emotions with others, especially if they are on the spectrum
too. Often through that we come to realise something isn’t really such a big
deal after all, or not something to be ashamed of, or fretted and worried over
for hours or days or even weeks like a dog with a bone, as we so often do. And
so there’s this release, this catharsis, that can and frequently does happen,
especially when we first ‘come out’ as autistic, and find the autistic
community, and feel accepted by them. But I sense there is also a deep reserve
within many, perhaps even most, autistics, even the ones that seem most
‘outgoing’ and ‘sociable’, that means we have a lot of stuff we keep to
ourselves.
And to me, this seems perfectly okay. In many circumstances – eg when
confronted with those who can’t or won’t understand us – it’s actually a damn
good idea to ‘keep stum’. But even when that isn’t the case, we still have the
right to choose, and if it doesn’t ‘feel right’ to reveal certain ‘stuff’, then
I don’t see why we should. How much of our ‘stuff’ we do share, and when, etc,
is naturally going to differ from one individual to another, and one situation
to another. All I am saying is that if we keep certain things to ourselves, it’s
not a Terrible Thing, and we’re not Terrible People for doing it. (Or not doing
it, as the case may be. Maybe I’m wrong, and there are tons of autistics out
there who happily Reveal All?)
My point is - go with what feels right for you. We have the right to do whatever ensures we feel emotionally
secure, without apology or feeling ashamed of it, or of ourselves.
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