I’ve been
slowly working my way through the Loud Hands anthology, and I have to say, it’s
pretty good. Some might be thinking, of course you would say that, your writing
is in it! Well I leave it up to others to judge my writing on its own merits or
lack of them, what I want to talk about is the other writings in the book.
There are
so many good pieces here, I hardly know where to begin. Jim Sinclair’s
historical and ground-breaking piece, ‘Don’t Mourn For Us’ (p13), forms a good intro - written in the early
1990s, yet it’s just as relevant today. Then there’s his other seminal piece,
‘Why I Dislike “Person-First” Language’ (p152), also from the 90s, and also
just as relevant.
There’s
also Ari Ne-eman’s retrospective on how ASAN got started (p 66), where he
states that one of the reasons for its beginning was that “good intentions and
love were quite frankly just not enough… When people that you talk about, or
set policy on, or conduct research regarding, are not in the room, even good
people feel licensed to say horrible things. You cannot help people through
pity and fear.” (My emphasis, as it’s something we should never forget,
or let others forget.)
Nick
Walker’s ‘Throw Away the Master’s Tools; Liberating Ourselves from the
Pathology Paradigm’ (p 156), is a little more ‘academic’ or ‘intellectual’, and
some may not like it for that reason, but as someone who came out of the
feminist and anti-racism movements in the 80s, ‘the master’s tools’ is a phrase
that has great resonance for me. It’s basically about how we need to step out
of the dominant mentality, in this case the ‘autism as pathology’ mind-set, and
create a new frame of reference, and new language, to describe our reality.
Language is power, and changing the language is the way to empowering ourselves.
I feel it’s a very important piece of writing.
Julia
Bascom’s ‘Quiet Hands’ (p 119) is another important piece – even though I’ve
read it before on her blog, it still gets me every time. Her ‘This is Why’ (p
134) also moved me to tears, as did Amanda Forest Vivian’s ‘They Hate You. Yes,
You” (p 124). They also left me feeling angry and anguished about what’s been done
to us, what’s still being done to us,
as did Julia’s ‘Grabbers’ (p 137), and Shain Neumeier’s ‘Inhumane Beyond All
Reason’, on the terrible things done to autistics and other ‘different’ people
at the Judge Rotenberg Center. There’s so much out there that needs changing,
and Zoe Gross’s ‘Killing Words’ (p 163), is a potent and chilling reminder of why we need to change things.
The most
important thing about this book, however, is not so much the individual pieces,
fine as they are, but what the whole book
represents. Most autism books I’ve seen or heard of so far are either
autobiographies by autistic people, books for parents of autistic children, or
‘self-help’ books for autistic people, often by those who are on the spectrum
themselves. There’s nothing wrong with any of these, but I do feel Loud Hands
goes a step further than all of them. More obviously ‘political’, It collects
and collates important existing advocacy pieces, brings in new ones, and
presents a vision of where we are, where we’ve been, and where we are going. It’s
a new type of writing ‘about’ autism, one which has been slowly nurtured in
blogs and social media groups and forums for quite a few years now, but this is
the first time it’s all been put into a book, and published, and put ‘out
there’ for all to read, and in doing so, it makes a powerful statement about us.
I believe
that this book is our ‘Declaration of Independence’, our Communist Manifesto, our Long March, our October Revolution, our
Stonewall Riot, our Our Right to Love,
our The Female Eunuch, our ‘burning’
of bras (actually just publicly dumped in a trash can at a protest outside a
beauty contest, but the media has never let feminists forget it), our Sisterhood is Powerful, and any other
powerful event or book or document of liberation or explosion of collective
frustration that you can name, that started some ball rolling, outlined some group
or movement or country’s priorities, allowed one oppressed group or nation or
another to redefine themselves, and get, or begin to get, their oppressor’s
foot off their neck. I believe that some day Jim, Julia, Zoe, Amanda, Nick, Ari,
et al, will be seen as our George Washington and Founding Fathers, our Martin
Luther King and Malcolm X and Audre Lorde, our Shulamith Firestone and Robin
Morgan and Germaine Greer, our Susan B. Anthony and Kate Sheppard and Pankhurst
sisters, our Gandhi and Steve Biko, our Harvey Milk and, well, anyone else you
can think of that did so much for their people, their brothers and sisters,
their race or gender or sexuality or nation.
It’s that
important. Read it.
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